Before the data integration centres can be established, and IT solutions developed, a number of critical questions have to be addressed. Against this background, BMBF initially funded a nine-month conceptual phase. The most attractive concepts were chosen in July 2017 for implementation in the subsequent four-year development and networking phase.
The solutions that prove successful in the developing and networking phase can then be applied on a broader scale, and at other locations, during the consolidation and extension phase. There will also be additional funding modules at the same time as this phase. The national steering committee will provide guidance throughout.
Conceptual phase (2016-2017)
A total of seven consortia were funded during the nine-month conceptual phase. Each comprises multiple university hospitals, plus various partners from higher education and research institutions, non-university hospitals, and healthcare organisations.
The consortia created solutions for shared data use and exchange, worked on concrete applications for data exchange (use cases), and developed plans for data integration centres, to be implemented during the subsequent phase.
All groups are actively involved in cross-consortia collaboration and coordination via the national steering committee, and in various working groups.
Development and networking phase (2018-2022)
In the four-year development and networking phase, the chosen consortia receive funding to implement their solutions.
Each participating university hospital and, where applicable, other partners in the consortia will establish a data integration centre, and develop their IT solutions for the use cases.
Towards the end of this phase, the consortia will be subjected to an external audit. This will determine whether the groups have successfully added value for research or patient care, and verify that data exchange is possible between consortia.
The consortia are also expected to recruit additional university hospitals as network partners, paving the way for successful solutions to be shared at a later date.
The aim of consortia activities is to strengthen medical informatics in Germany. As an incentive to create new professorships, BMBF will fund junior research groups at universities that have committed to establishing these positions.
Cooperation between and beyond consortia via the national steering committee, and in working groups for specific topics, will be continued. Guaranteeing the interoperability of the IT systems, and the existence of uniform data security, protection and quality standards is vital.
Moreover, additional funding modules are to be phased in. Networking projects between consortia and with new partners will help avoid siloed solutions. International collaborative projects are also a possibility, to ensure compatibility and interoperability beyond national borders. Accompanying research will be performed to identify technical advances in Germany and internationally.
Consolidation and Extension phase (2023-2026)
If the objectives of the development and networking phase have been achieved by 2022, then a further funding phase will follow. Solutions that have proven viable will be made available to additional university hospitals, and potentially to other hospitals and research institutions. To ensure researchers, doctors and, ultimately, patients benefit from these advances as much as possible, further actors will be involved in data exchange. These could include outpatient care and private clinics, for example.