5 June 2019. Urinary stone disease is a widespread disease with a high recurrence rate. Covering a period of 5 years, the German Federal Ministry of Education and Research (BMBF) will fund the establishment of a Nationwide Registry for Recurrent Urolithiasis in the Upper Urinary Tract (RECUR). The project led by urologist Prof. Martin Schoenthaler (Freiburg) is one of six projects that will receive financial support as part of the BMBF initiative to set up exemplary registers for health services research.
The digital stone register was developed under the patronage of the German Society of Urology (Deutsche Gesellschaft für Urologie e.V., DGU). It is supported by DGU working groups on Urological Research (Arbeitskreis Urologische Forschung, AuF) and Urolithiasis (Arbeitskreis Harnsteine).
The registry will make use of the digital infrastructure of the BMBF’s Medical Informatics Initiative (MII). It will accomplish existing data from the hospital information systems together with patient derived data provided via a new patient app. This project will be implemented as an additional use case for the MII MIRACUM consortium. Urologists and medical informatics specialists from MIRACUM centres Dresden, Erlangen, Frankfurt, Freiburg, Giessen, Greifswald, Magdeburg, Mainz, Mannheim and Marburg have joined forces to improve the structural and procedural framework for patients with recurrent urolithiasis. This includes advanced diagnostic algorithms and treatment paths.
The kick-off meeting for RECUR will be held in Frankfurt University Hospital on Tuesday, July 2nd 2019.