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Patient-Reported Outcomes
In doing so, it is crucial to include the patient’s perspective. They best understand the everyday effects of their illness and can provide valuable insights into the effectiveness and tolerability of therapies. Such inclusion of the patient perspective not only leads to patient-oriented, individualised treatment, it also enables faster interventions in the event of deterioration and at the same time strengthens the therapeutic relationship. This enables comprehensive, holistic care that takes into account both objective medical indicators and the subjective well-being of the patient. The measurement of the subjectively experienced state of health with the help of patient-reported outcomes (PROs) in the form of questionnaires plays a crucial role in the implementation.
Goals
This is exactly where the PCOR-MII network comes in. The aim is to establish the digital recording of PROs in clinics and to integrate them into the national core data set of the Medical Informatics Initiative (MII). This should make it possible to evaluate this in connection with other medical information - for example on therapy and diagnostics - and to research valuable connections between the subjective and objective parameters for measuring the success of the therapy.
“Health data reported by patients should be just as available as a laboratory value - that is our mission.”
Prof. Dr. Matthias Rose
PCOR-MII's digital solutions are intended to be used in three specific clinical scenarios:
- anorexia nervosa,
- persistent somatic symptoms
- and renal transplant follow-up.
In the case of anorexia nervosa, risk factors should be better understood, effective treatments should be identified in the case of persistent somatic symptoms, and long-term medication should be ensured in the case of kidney transplants.
“In PCOR-MII we build bridges between medicine and computer science in order to put the patient in focus.”
Prof. Dr. Fabian Prasser
Advancing the medical care of patients with chronic diseases
PCOR-MII is a collaborative project that brings together patient initiatives, medical informatics specialists and clinicians from various disciplines from 11 MII locations, as well as international initiatives measuring PROs and technology partners. The project ties in with the developments of the network of university medicine (NUM) and places a special focus on user-oriented functions as well as legal and interoperability aspects. This project wants to contribute to decisively advancing the medical care of patients with chronic diseases.
Contact:
Prof. Dr. Fabian Prasser
Medical Informatics
Berlin Institute of Health at Charité - Universitätsmedizin Berlin
Charitéplatz 1
10117 Berlin
Telefon: +49 152 04 31 80 73
E-Mail: fabian.prasser@charite.de
© Peitz/Charité
Prof. Dr. Matthias Rose
Charité Centre for Patient-Centered Outcome Research (CPCOR)
Clinic Director | Internal medicine | Psychosomatic medicine | Psychotherapy
Charité - Universitätsmedizin Berlin
Charitéplatz 1
10117 Berlin
Tel: +49 30 553001
E-Mail: matthias.rose@charite.de
© Peitz/Charité